Showing posts with label migraine. Show all posts
Showing posts with label migraine. Show all posts

Tuesday, March 1, 2011

Parin Stormlaughter has shared: Migraine Research Foundation

This is an interesting article. Read between the lines.

The opening paragraphs are telling. It seems that the Migraine Research Foundation went into this ready to conclusively prove that morphine is bad for migraine treatment. The study results did not support that hypothesis.

Basically, the study did not prove its hypothesis but justified its existence through other interesting findings. The whole article is interesting if you're an egg-head like me.  Continue to scroll down for other research projects and results if you're interested.

There will come a point in time when guidelines will state that opioids should not be prescribed for migraine treatment unless a well-managed and effective prevention regimen is also present. 

What must happen before migraine treatment reaches that point:

  1. Extensive and effective data-mining must be performed to clearly and unequivocally measure the effects of triptan usage.  The data-mining must include locating the number of stroke and other cardiovascular event patients who were treated with triptans within 72 of the discovery of the event.  If patients were not specifically asked about triptan usage prior to the event, that must be clearly noted as well.  It must include locating the history of triptan usage by people identified as having MRI/CT lesions of people who also have migraine.  
  2. Well-designed data-mining studies must locate and clearly establish the effects of prevention regimens in patients who have opioids in their attack management plans.

These things must be kept in the forefront of the minds of everyone who has migraine, lives and works with migraineurs, studies migraine, or treats migraine:

  • No one has ever fallen over dead from one proper opioid dosage for migraine; however, people have fallen dead from ONE dose of a triptan
  • Until the effect of triptan administration on stroke and other cardiovascular patients has been thoroughly data-mined and further studied, nothing else is worth study
  • Nothing can or will take the place of prevention of attacks.


Migraine Research Foundation
Source: migraineresearchfoundation.org

 
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Friday, February 18, 2011

Shared: Reporter's on-air gibberish was due to migraine - Entertainment - Television - TODAYshow.com

What a sight. What a teaching moment for migraine!

I have migraine. When this happens to me (and it has), I simply have to stop talking. It's an odd sensation, not to be able to make your mouth form the words you want to say.

Best wishes and good luck for Serene Branson.  The article says that she's no stranger to migraine.  I send her gentle hugs.


Reporter's on-air gibberish was due to migraine - Entertainment - Television - TODAYshow.com
Source: today.msnbc.msn.com

KCBS-TV reporter Serene Branson was doing a stand-up Sunday when her words became incoherent. She was examined by paramedics after her broadcast and went home to recover.
 
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Friday, January 28, 2011

Sharethis: NBA bans Dwyane Wade's migraine goggles - CBSSports.com

In the workplace, reasonable accommodation regulations creates a level playing field for otherwise successful employees who need devices in order to perform work properly.

I believe Dwayne Wade would more than qualify as successful employee.  Migraine is most assuredly a disabling condition for which a number of devices have been developed which promote productivity.

I'd go to bat for him if I were coach, so to speak.

Please read the short article.  Thanks to @themigrainegirl on Twitter for sharing.


NBA bans Dwyane Wade's migraine goggles - CBSSports.com
Source: cbssports.com

 
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Thursday, August 26, 2010

Oh Scalene! Whatcha doin' to me, Scalene? :)

Well! We might be excavating deeply enough to find some real therapy to go along with the drugs to work on my Meniere's Syndrome and Migraine Disease.

At the moment, I'm iced up and doing some music therapy for the pain in my head. The pain's not pounding yet but it will be in a little while. That's what physical therapy on a neck can do!  Taking meds now and I'll be off for rocks shortly.  Chris told me to expect all this exacerbation of symptoms.

Many of my Meniere's buds and I have a thin strip of painful muscles down the sides of our necks on the side (or sides) in which we also have Meniere's. My right ear is currently diagnosed with Meniere's. The painful strip running down the right side of my neck has made me weep from the relentless intensity. Neither ice nor heat relieve the pain nor even mitigate it. With the Migraine preventative medication regimen I'm on, nearly all pain in my entire body responds to either Advil, Aleve, or if it's Migraine, to Indocin (occasionally I'll need my really big pain guns but not often).  They'll relieve the thin strip of pain but not the tenderness when I touch it.

Today, physical therapist Chris got to work on my neck.  He worked and worked and suddenly SHAZAAM.  He touched that painful strip (which had not been actively hurting and isn't hurting now) and I nearly came off the table from the hurt.  I felt it inside my right Meniere's ear HARD.

[As an aside, I felt bad for the other people in the clinic who heard my *ack*.  Hope they didn't wonder if Chris was throttling me or something.  XD]

He told me he had touched a group of 3 muscles called the scalenes.  Scalene muscles are innervated by one or more of the very vertebrae in my neck that I know are in trouble:  C-2 through C-7.  Chris told me that if we had time he'd get the anatomy book out and we'd look at it but dang, he spent two hours on my backbone as it was and I was a steak tender at the end.  I told him I'd look it up on the internet.

Scalene muscles seem to be associated with a repetitive injury called thoracic outlet syndrome (TOS).  TOS causes, among other things, numbness across the tops of your arms down to the ends of certain fingers.  That's a sensation I have during some migraine attacks, usually during prodrome.  Won't matter if I have TOS if they can just fix it.  Not looking for yet another diagnosis.  All I want is to get well.

Anyway, Chris worked like a field medic:  he noted how bad he was hurting me but it didn't stop him.  He got all up and under my C-1, also called the Atlas bone, but otherwise didn't do much near my vertebrae at all.  He concentrated on neck muscles.

Last thing he did on my neck was something he called "manual traction".  MY WORD I'd hire that man to do that to me every day.  I told him I felt an inch taller but he said he hoped he'd not stretched me but half that.  XD

We took a break and he showed me how to use my TENS unit.  E-stim which clinics use for pain relief is very good for me so I'm pumped about trying this for pain.  Chris gave me free reign to use it wherever I needed it.  COOL BEANIES.

[Another aside:  TENS units are not designed for the electrodes to be used directly on the head.  There is a company that makes an over-the-counter mini-TENS for headache but otherwise, don't anybody use TENS electrodes directly on your head unless your doc or PT tells you to and even then, have them explain why your prescription durable medical equipment TENS unit is safe enough for your head, why not?]

I have enough pain in other places that I could burn up the batteries in short order, I imagine.  And, after trying a nice little TENS secret that the owner of the clinic uses for vestibular problems, we discovered last week that it temporarily stopped the migraine pain that last week's work triggered.  I'm telling you, Dr. Breathtakingly Arrogant is onto something.  He spotted my Meniere's (which is a cochlear condition sometimes called cochlear hydrops) and told me that many of his tough cases have cochlear issues as well as migraine.

I had a rare opportunity, during my first visit to clinic, to be evaluated by a physical therapy doctoral student.  She was utterly amazing.  Never have I had a more thorough spinal and balance evaluation, ever.  She was about to recommend a...walker...but said that if I was doing ok and not falling with my cane, it would do.  Elder Assistant Offspring told me that if it ever did come down to a walker, she and my other daughter would pimp it out for me.  My only request was for headlights.  LOLOL

Anyway, that's a status report on the state of my head.  I've decided to name my TENS unit "Scalene".   After while Scalene and I gonna hook up and go cruisin'.  :)

Some links below to information about scalene muscles if you're just interested.


Scalene muscles drawing
Scalene muscles
Source: en.academic.ru

 
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Head and Neck Musculature, innervation of scalene muscles
PT Central - Muscles of the Head
Source: ptcentral.com

 
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Gray's Superficial Cervical Plexus (purple-taupe)
File:Gray784.png - Wikipedia, the free encyclopedia
Source: en.wikipedia.org

 
Parin Stormlaughter sent this using ShareThis.

Copyright 2008-2010 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Monday, August 9, 2010

Rough few days

I posted this on Twitter a few minutes ago.

"Can't catch a break. Fw: The Aug. 7th solar flare might affect Earth after all.New data show a CME heading our way http://spaceweather.com"

New Moon in Leo tonight and all this solar drama has done me up a treat.  Thanks to the energy healer, you know who you are, who got in there and unblocked some things.  It helped.  Praying for your intentions.  :)

I'm going to be out of medicine in a few days if this doesn't stop.


Copyright 2008-2010 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Saturday, August 7, 2010

Just sharing what Migraine and Meniere's together are like

Today is a dangerous type of day.

I've slept 18 of the last 24 hours, still need sleep.  Dreamed that Diana, Princess of Wales, had been married to my old choir director's son.  She asked me to please investigate why no one will allow her to excavate the construction accident site where his remains are buried [as far as I know, IRL the man is alive and well and living happily ever after].

Then I dreamed my late father gave me $10 to buy some lobster that was on sale.  My brother and cousin weren't interested in lobster so we didn't get any.

Just did a heat/ice alternating thing on my head.  It helped the pain somewhat.  I've discovered an additional nerve in my face that is now flowing with battery acid.  One more to add to the list.

My right ear has stopped doing deep Chinese gong tinnitus.  In addition to the regular 4 tinnitus sounds, it's been screaming a high-pitched squeal since yesterday (different from the Morse Code beeps).  My left ear has taken up the deep Chinese gongs.  Disequilibrium is so bad I'm trying not to walk because I'm just crashing into the wall and furniture.

Rescue medicating on days like today is dangerous.  I keep thinking that more will be better.  More will not necessarily be better.  More of the meds I have could be very, very bad.

I'm sitting here in the dark wearing prescription sunglasses.  I can't turn off the loudest of the fans because it's 95o outside and the a/c can't keep up.  I may have to get ear plugs.  With ear plugs I REALLY hear the tinnitus.  The neurotologist diagnosed me with a level of disability from tinnitus by itself.  You can't imagine how nuts it can drive you.

I have a good glare screen on my laptop.  I utilize the Windows Vista accessibility features to make the screen less painful to my eyes.  Today those features aren't helping.  I'm typing this with my eyes closed, for all intents and purposes.  I need to get off here and I will shortly.

Many compassionate people are so understanding of pain.  But unless you have migraine, you can't wrap your mind around how stupid it is.  Really, medicating on days like today is dangerous.  The impulse is to take more and more and more medicine to make the pounding pain STOP.

I'm into complementary treatments just to fill the gap between medications and relief.  I'm going to get some rocks that I know will help until the OxyIR, Indocin, Valium, and Robinul kick in.  I'll get them just as soon as I can get up without falling.

Fifteen seconds after I stand up, my head will explode and I'll have a stroke.  Well, maybe no stroke this time but there is no way to predict which migraine will be a migraine and which one will be a stroke.  My situation includes mitral valve prolapse which, according to a long-prior neurologist who succumbed to pancreatic cancer, is likely to be spitting out tiny blood clots that are traveling to my brain.  One day, he told me, my MVP would spit out a blood clot just a tidbit too big and instead of a migraine attack, it would cause a stroke.  I'd likely die.  Pleasant thoughts but in his defense, he told me this about 6 months before he died himself so death was on his mind.

Biggest issue next to this attack is food.  I'm hungry.  But I'm not safe in the kitchen right now.  I broke off a piece of bread and had it with cottage cheese.  That's what I've had today but really, I haven't been awake very long either.  Next will be Lucky Charms and milk.  I have a can of Campbell's Healthy Request (or Choice, or something) that has no MSG.  If I feel better enough after while I 'll heat it up.  That will be a big help.

If I get to feeling better I'm going to have to make a comfrey/catnip infusion to help repair the effects of all the Indocin I've had in the last 2 days.  This particular infusion is utterly amazing for relieving the stomach pain from NSAIDs.

And, I've gained weight.  No matter the pounds, my waist still stays smaller than my hips.  That a Sagittarius Sun for you (Sagittarius rules hips and thighs).  No joke, I seriously could do with some poundage loss but officially, I'm still proportionate.  Go figure.

Just wanted to share how stupid migraine and Meniere's attacks are.  Going to try to solve this without taking any more meds for a while.  I could barely swallow the last pills I took.  My body doesn't want to take any more pills even though my brain believes I need to in order to get relief.

Those one or two distance energy healers that know who you are, if you have time to help out a poor soul, I'll pray for your intentions in return.

I am so f***** up sick. 



Copyright 2008-2010 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Monday, June 28, 2010

Sharethis: How Somebody’s Medicines May Be Making You Sicker - Welcome to the Alliance for Natural Health - USA

No joke, I've got to figure out a way around Full Moon/New Moon Meniere's/migraine attacks. They're kicking my butt. Through my head.

Medicated patch systems are mentioned in this article as one of the ways pharmaceutical pollution reaches the water supply. I use the Vivelle_dot estrogen replacement patch myself. The package insert gives directions for removing residual components after patch changing - basically, you use rubbing alcohol to dissolve the adhesive and a cotton ball to wipe it away. I'll be redoubling my clean-up efforts now you may rest assured.

I'm hitting the sack with rocks. If I don't have to take any meds I'll be happier, but I'm not going to sit around suffering. I've determined that it's not good for my state of mind. Emotional hygiene is one of my New Year's Resolutions and one I've begun to get a handle on. Never want to lose ground. It may happen, but it'll be against my will if it does. B)



Welcome to the Alliance for Natural Health - USA
Source: anh-usa.org

 
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Sunday, June 27, 2010

Sharethis: Kava Kava - What is Kava Kava

One of life's joys is to experiment! Try new things! Expand your horizons!

I'm a huge experimenter.  Sagittarius Sun in 8th House, after all - the eternal quest to experience quests.  I most assuredly experienced a quest recently.

I've been battling depressive dips as part of Migraine prodrome for a few years.  They've not always been present.  No idea why suddenly they suddenly appeared.  Maybe they'll disappear.

I already take a therapeutic dose of a marvelous antidepressant, Effexor XR, every day.  It's part of my Migraine preventative regimen which also includes verapamil and Keppra.  Other than the regular "blues" that everybody contracts, I shouldn't feel depressed.

These depressive dips don't cause me worry anymore, not like they did when they first started.  Still, I don't like them.  I never want to have another one.

I was battling one of them the other night.  St. John's wort, a safe mood-enhancing herb, isn't something I want to try to combine with Effexor.  So I started hunting around for something else to try.

I found again--kava kava root, also called simply kava.  I've tried kava capsules but of all things, they make my head hurt!  Still, I've used them for social events.  I can speak to and perform for 3 people or 3 million people, live or taped or by tin-can telephone if you like.  Show biz is a breeze.  But please, never ever ask me to go to a grown-up party where I don't personally know and deeply love at least 85% of the folks in the room.  Rivers of glow streak my makeup and soak my underclothing.  I throw up.  I dream of death and it would be easy and welcome.  Groan-and-throw-up parties are what I consider hell to be like.  Kava has made it possible for me to discharge social duties I'd otherwise never be able to handle.  Kids parties?  Love'em, threw them for my daughters regularly.  Kept me out of the groan-grown-throw-up parties.

But I can't deal with anything else that makes my head hurt.  So kava stays in the bottle on the shelf for emergency social appearances.

I have absolutely no idea what possessed me to order shredded kava root a while back.  I've amassed a mass of herbs from Frontier Co-op and Mountain Rose Herbs and a couple of other places.  I've been reading Susun Weed and Rosemary Gladstar and remembering things I used to do with plants when I was younger.

Anyway - so I remember I've got these shredded kava roots.  You shouldn't heat water to make kava beverages because some of the active ingredients are destroyed at 140oF and higher.  Capsules would seem like the perfect alternative but many of them contain kava stems and leaves which have been linked to liver damage (and they don't have any good relaxation benefits either - they just fill up the capsules with less of the active root powder).  Worse, some capsules are doctored with various kava extracts prepared with chemical solvents that should never be used in the preparation of anything intended for a human body.

So, I've got these shredded kava roots.

I've watched the shows on TV describing traditional methods for preparation of kava beverages.  Seems that the roots are never eaten or fermented in any way.  They're just powdered, chewed, or ground and mixed with water.  Then they're either kneaded or blenderized, strained, and then drunk.  Straightforward, really. 

Blame it on the Lunar Eclipse that hit my Sagittarius 8th House.  Blame it on my own curiosity.  Blame anyone but me for wanting to try CHEWING SHREDDED KAVA ROOT to see what that segment of traditional beverage preparation would be like.  Mastication seems to make the kavalactones more easily accessed.  And it would be FUN.

I had been reading accounts of poor virgin daughters of Pacific Island tribal chiefs who would elope to avoid the chore of chewing kava root for the whole tribe.  Poor things!  Sexually pure virgins were considered to have what it took to make the perfect kava bolus.  Girls have left virginity behind for less than kava roots, it seemed to me.  Surely if I was making just a serving for myself (half the average quantity as always at first, to gauge my sensitivity), I could do it. 

Chewing shredded roots!  I eat carrots all the time!  Surely I was up to chewing dried kava!  I closed my eyes and dove into a nice pinch of the tablespoon I had settled upon for the 2 cups of water I wanted to use.

Three tablespoons of kava root it took me to decide that this was fun to do--once.  The taste was fairly pleasant as dried roots go but the resulting goo was disgusting to look at before getting stirred into water (figured out on the second serving to just put the chewed pinches directly into the tap water), and once I got a small splinter in my throat that wouldn't go up or down for a minute.  The blenderizing didn't smooth out the chewed pinches as much as I expected but that worked out well for the straining step.

All in all, it was an adventure in libation.  If you shoot the drink it hits faster but wears off quickly as well.  If you sip it, you may never know you've had any.  But so far, no head pain. 

Best of all, this delightful little adventure got me out of the Migraine dumps.  Chewing shredded kava roots is like chewing toothpicks soaked in Novocaine.  I imagine they'd be splendid for a sore throat or if you bit your tongue or something like that.  Once I finally make it through what I've got left, I'm going the powder route which, I understand, is the preferred method nowadays in the areas where kava grows.

If I ever decide to do this again, that is.  I'm not convinced that the benefits are worth the effort and besides, next time it won't be a first-time adventure.  I'll have to go through this ritual several more times before I decide for sure.  There are a couple of things to be aware of so take a minute to read the attached article, please, before embarking on kava.

I'll have to find something else when the depressive dip rolls around again and only an adventure will solve it.  Need to make friends with an ethnobotanist, maybe try smoking mugwort or snorting sneezewort, something legal, safe, and new.

I made it through this time better off than I had been before.  That's a good goal for next time.  Now pardon me while I floss out a Novocaine toothpick.   :)

Kava Kava - What is Kava Kava
Source: altmedicine.about.com

 
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Wednesday, April 28, 2010

Sharethis: Medication Overuse Headache Article: Education Through a Biased Lens? ~ Somebody Heal Me by Diana Lee

Diana Lee has a critically analytical mind. Her commentary on the article she links to is excellent. Everybody read both her article and the one she comments on. What she and the article say are both absolutely right, in addition to being true.  At IRS this would be called full, accurate, and complete.

Neither Diana's article nor the one she links to is about what to do in that Land of the Living Dead that exists between the end of pharmaceutical treatments and the end of the attack, but that little problem is a huge problem for me. 

As Sparkling readers know, I'm huge into complementary treatments for Migraine and Meniere's, and for all the stuff that bothers me. It appears to me that complementary treatments are a Migraineur's sole port in the storm when he or she reaches the acute reimbursed pharmaceutical treatment limit, limits which despite claims to the contrary are frequently set by insurance companies according to toxicity of the treatment rather than desire to preserve company profits. I am aggressively pursuing complementary treatments to go with preventative work all in close conjunction with all my doctors.  I'm all about prevention, myself.  The fewer attacks that I have to treat at all, the better for me from my point of view.

Today's Full Scorpio Moon matches my own progressed Full Scorpio Moon and I'm taking the day to doctor it. I did a few little complementary things to prepare for this one and so far, this occurrence of the twice-monthly Full Moon/New Moon attacks is less intense than usual. That's a good thing.



Medication Overuse Headache Article: Education Through a Biased Lens? - Diana Lee, Somebody Heal Me
Medication Overuse Headache Article: Education Through a Biased Lens? ~ Somebody Heal Me by Diana Lee
Source: somebodyhealme.dianalee.net

 
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Sunday, April 4, 2010

Sharethis: Healing Wise ... An Abundance of Greens by Susun Weed

Just a quick note before the Exploding Migraine Warning of a Significant Event goes into effect.

It hurts my heart that I have a substantial belief system difference with Susun Weed; therefore, I don't recommend her books. I do recommend the health information contained in them.

I'm improving daily from the herbal and "green" information in her menopause book. I have mourned my losses from my hysterectomy and ovary removal, integrating that I will never conceive another child, never hold another soul in my body along with my own.

Mourning has broken, and I'm whole again in that respect. You never really get over the death of a child and my four miscarriages will never go away. But now I am strong again with my conception and childbearing in the "experience" column.  It hit me quite forcefully that I never dealt with all the physical things that surround surgical menopause after the surgery six years ago this month.

Time to deal with MENOPAUSE. :P

Oh, my word what a blessing Vivelle_dot estrogen replacement created from yam has been! Never, never did I dream that things could be so...even. I see now that a good number of my other maturation issues revolve and repeat themselves because I haven't physically cared for my different self which has had no ovaries or womb since 2004.

Time passes slowly when you're getting well. It passes very slowly when you're anxious to get on with living! My own belief system is maturing as my age progresses and I want to get on with practicing it as well.

In this so-far quiet year, the Mother Earth again has proven herself to be the true mother that she is. Abundant, so abundant, freely giving me her green plants and air, water and sunshine, rain and wind, and the life that is borne of flora and fauna. Husbandry and right use of Earth's abundance will restore me, rebuild me from the inside out and outside inward. Does it cost so much to give time to share what "right use of the Earth" really means?

Well, right this minute, yes! My head is pounding from tax meltdown - my mother accidentally wrote a check to IRS for $5 million. It was a clerical error one would correctly say and we caught it before it got mailed, but all the problems that would have needed to be solved had it made it to IRS burst into my mind. Her reaction to the mistake didn't help either of us. This entire weekend has dealt me an assault on my energy body. A long talk with a friend has helped as has rose quartz along with mullein, yarrow, and mugwort infusion. Tomorrow, Easter Sunday, I plan to be outside as much as I possibly can in sunshine, in the breeze, and taking a walk through the backyard if I can. I need my Earthly mother after taking care of my earthly mother!

Please read the article. Find some abundance to feed.

And go outside: Your Mother's calling. :)



Healing Wise ...
An Abundance of Greens
by Susun Weed
http://www.susunweed.com/herbal_ezine/April10/healingwise.htm?utm_medium=email&utm_source=MyNewsletterBuilder&utm_campaign=Wise Woman Herbal Ezine - April 2010 1410249287&utm_term=Go to An Abundance of Greens
Source: susunweed.com

 
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Thursday, March 18, 2010

Annual Month-Long March Meniere's/Migraine Attack

***Simul-posting***

Somebody please put me out of my Meniere's/Migraine misery. Just let me live in the process.




Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Sunday, March 14, 2010

Sharethis: Furious backlash from Simon Singh libel case puts chiropractors on ropes | Martin Robbins | Science | guardian.co.uk

Three-day combo Meniere's/Migraine attack, but wanted to comment on this.

The sad aspect of this controversy is that there indeed may be an energetic aspect to many conditions. A person may have nothing that a doctor can identify as wrong, yet be in poor health. Chiropractics and energy medicine may be able to resolve the poor health and return a person to radiant vitality and well-being even though no medical condition were ever to be identified to have caused the decline in health.

Many complementary and some alternative treatments have millenia of flawless track records for restoring radiant vitality and well-being to the sick and the well alike. I'm working with rock medicine, energy medicine, and herbal medicine to restore mine. I believe it will be a step forward to be better between attacks.

Going to take more meds now. My prev med regimen, smokey quartz, and Maxwell House Lite have settled my stomach and given me a window to eat some soup. I'll make it. I always do.

Read the article. Please comment if you feel so inclined.

Furious backlash from Simon Singh libel case puts chiropractors on ropes
Furious backlash from Simon Singh libel case puts chiropractors on ropes | Martin Robbins | Science | guardian.co.uk
Source: guardian.co.uk

 
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Tuesday, February 16, 2010

Sharethis: Victims of electrosensitivity syndrome say EMFs cause symptoms - latimes .com

Giving out from C-6 vertebra-exacerbated Migraine but can't let this one go without a comment. Please keep in mind that I'm at the beginning of a major attack.

Don't trust all the headlines you read.

First article: Commentary on the second article.

Vastly different headlines, different conclusions. Microwaves are so dangerous that microwave ovens are shielded with LEAD. What levels of microwaves were the study subjects exposed to? Are they at cancer risk now?

This resembles the campaign to convince the public that monosodium glutamate (MSG) isn't a neurological trigger because studies can't prove that anyone is allergic to it. What a straw man! Forget allergies. They were never the issue with neurologically sensitive people anyway. Study the MSG/neurological triggering problem if you want the answer to the MSG/neurological triggering phenomenon.

And keep in mind how few people there are other than Migraineurs who understand Migraine as a genetic brain dysfunction disease. Think of the blogs and bulletin boards out there working extremely hard to set the record straight. Migraineurs, how long has it taken many of us to find a doctor who takes us seriously? How many family members and friends tell us that there's really nothing wrong with us that "living right" won't fix? That our problems are all in our heads? Who all has been called hysterical by the medical community or, to use the medical slang, a "turkey"? Or a "little papers" patient?

Bottom line: if it triggers you, it triggers you. Anyone who tells you differently should be shunned.

Sheesh.

I'm going back to bed with ice on my C-6.

This should be discussed in greater detail. Please comment if you have a different view point. It may be a day or two before I can get back to you but this is important.


Victims of electrosensitivity syndrome say EMFs cause symptoms
Victims of electrosensitivity syndrome say EMFs cause symptoms - latimes.com
Source: latimes.com

 
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Experts: 'Electrosensitivity Syndrome' a Mental--Not Physical--Problem
Experts: 'Electrosensitivity Syndrome' a Mental--Not Physical--Problem
Source: healthcentral.com

 
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Monday, January 4, 2010

Help me, I think I'm falling...

"Help me, I think I'm falling..."
words and lyrics by Joni Mitchell

I was standing dead still, looking out the window to see if I could discern even the tiniest snowflake, and then crashed into the closet doors to my right.  Never even knew I was off balance until I hit the doors.  No memory of falling either.  I was looking--and then was crashing.  The point is that nothing triggered me to catch myself before I hit.  Natural off-balance reactions failed completely.  No surprise.  I test as having no vestibular function.

Woke up with my head numb and heavy-feeling on my right side, where it was hurting last night.  My ears are not hearing equally.  And I sliced my thumb last night and bled all over celery and cucumber lol.

These next few weeks might be quite rough.  The waning El Nino weather pattern is creating one huge system after another, one every couple or three days.  I'm trying a new Bach Flower Remedy combination specifically for dealing with weather changes (more on Bach and me soon).  Too bad I had not tried it before I fell!

I was quite pleased that I had a couple of good days last week.  I'm feeling better between Meniere's and Migraine attacks and that is an absolute improvement.  I'm down to all "decafs" now:  Decaf coffee, decaf tea, and I've got just one pound of real coffee in the freezer for Migraines that call for it.  My sensitivity has gone through the roof.  A cup of real coffee now would make me a babbling maniac.

I've got a couple of things on my job plate this year:  A new system by Dr. Peter D'Adamo that tailors diet and lifestyle recommendations by running a large number of pieces of data through a web-based calculator; continuing to concentrate on emotion hygiene now working with Bach Flower Remedies; resolved to memorize how to trace my energy meridians; and I'm going to cut my hair myself this year.  Really! 

This might turn out to be a year of introspection for me.  I'm good with that.  I need time to figure out more work-arounds such as the cutting-my-hair-myself thing.  No way on earth I can lay my purely busted cervical spine into the sink at the shampoo station, just don't seem to be able to find a stylist who understands the words, "I CAN'T HANDLE A COMPLICATED HAIRSTYLE."  I'll just do it all myself.  So there!  :p

I need more time to understand rocks and all the wonderful things they can do.  There hasn't been enough (or much of any really) research done on therapeutic external use of minerals so I'll continue to guinea-pig on myself.  I am having trouble adapting to how quickly my overall sensitivity is escalating and need time to figure out how to deal with that.  I'm having success with 100% pure essential oils, simple, plain and natural foods, and--yes, I'm admitting to this--I've had some success with feng shui.  But it all takes time, brain time, silent time, alone time, down time, for me at any rate.

I need more time by myself overall.  My mother is extremely resistant to cooperating.  I understand that she's grieving still.  But now she has a few friends her age, a marvelous volunteer job one day a month that she loves (perfect for a 76 year old), and I'm not going anywhere.  Time for some boundary-setting, I guess I'm saying.

I'll be posting fewer columns here as well.  Posting my stream-of-consciousness ponderings wouldn't be useful to me nor interesting to all y'all.

Hopefully, a quiet year ahead.  I most assuredly need it.  I'll bet we all do.  :)


Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Monday, December 21, 2009

Christmas Carols for You!

See if you can guess the names of Christmas songs I've parodied? :D

[title]
We wish you a healthy Christmas!
No headaches upon this Christmas!
A warm, understanding Christmas,
And a pain-free New Year!

Less Migraines we bring, for you and your friends,
Less Migraines for Christmas and a pain-free New Year!

[title]
There we went a-vomiting
Before we gained control!
There we went a wand’ring
Such foggy brain’d trolls!

Love and joy come to you!
May your health get better too!
May God bless you and send you
A year of better health,
May God send you a year of better health!

[title]
I’m dreaming of a white ice pack,
Just like the ones my mother knows,
Where the cold spots freeze you,
And warm spots fail you,
Like men, watching TV sports!

I’m dreaming of a cold ice pack,
With every pounding pain I feel,
May your days be dark, quiet dreams,
Close the door to soften touchdown screams.

[title]
The Cluster and the Migraine,
When they are both full-blown,
Of all the curses that man may know,
It’s the combo that’s the crown.

[title]
In the bleak mid-Migraine,
Dreadful aches and moans,
Right behind the eyeball,
Underneath a stone.

Rocks were piled up, rock on rock,
Rock on rock,
In the bleak mid-Migraine,
Not so long ago.


[title]
Toradol, toradol, toradol rocks!
Toradol eases, toradol stops!
No wracking aching
Dependency free!
I’ll take an IV, if you please!

Toradol, toradol, toradol rocks!
Toradol ‘round the clock!
Toradol is wonderful
An IV heaven sent!
Doesn’t Toradol rock!  :D

Merry Christmas if that's your holiday.  It's mine.  Warm love and wishes for health and happiness!



Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. Nothing in the above article is remunerated content. Remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Monday, November 23, 2009

Sharethis: Migraine Increases Likelihood of Stroke - US News and World Report

Heeheehee! Oh heck yeah, I'm a spoil-sport! An article about STROKE RISK on Thanksgiving!

Yeeebuddy, you got that right. When you're a walking stroke waiting to happen like I am, you don't get time off for holidays from vigilance.

The study appears to have missed the two most crucial bits of information that could have been gleaned had anyone thought to look for them: whether the stroke sufferers had taken any triptan therapy in the preceding 48 hours, and whether any were on Migraine prevention medication (or medication with Migraine preventative effects). I believe triptans may contribute to Migraine progression (including contributing to strokes) but without tracking it or mining it out of previous studies we won't know. All we'll have are the prescribing information warnings and contraindications from the drug manufacturers.

Hmmm...that might be a good project: to put links to all the triptan prescribing information here on this blog.

Full disclosure: I have prescribed for me a triptan called Axert, but not for Migraine. Triptans do not provide any Migraine relief for me. I've been diagnosed with cluster headaches for which Axert is a miracle and they're what the doc prescribed Axert for. I've needed fewer than 12 doses in the last 18 months, one of which I took this week. One Axert and the cluster cycle is busted. That is utterly amazing. Cluster headaches are also called "suicide headaches" because that's an apt description of how they affect some of us. I have no other triptans and they are not in the Migraine portion of my doctor-and-me-drawn-up management plan.

I'm not totally opposed to triptan usage. I believe it should not be the first rescue medication a person reaches for in an attack and I believe it should not be written into Migraine management plans that way. The much-maligned health insurance industry frequently limits the number of doses of triptans that they'll pay for in a month's time. I can't help but wonder if that's because triptans are not harmless.

Anyhow...eat turkey, or tofurduken if you're Weird Al, rest after dessert, take a nice long walk in the fresh air, and know that the Sparkling One is thankful that you read her thoughts.

Wait...that doesn't sound exactly the way I mean it...some people do read thoughts...never mind, the dressing's getting cold. XD



[Article at least number 1,801 Editorial note] Migraine Increases Likelihood of Stroke
Migraine Increases Likelihood of Stroke - US News and World Report
Source: health.usnews.com



Parin Stormlaughter sent this using ShareThis.

Wednesday, October 21, 2009

Sharethis: FTC: Bloggers must disclose payments for reviews - EarthLink - Technology News

And...there's another issue to consider: are remunerated bloggers correctly reporting this on their income tax returns? None of my business and I couldn't care less but it did cross my mind.

I do not and have never received any remuneration for either of my blogs--nope, not even an single penny or item. I have no financial interest in anything that's not in the Thrift Savings Plan (about whose investments I have no information nor could get any). Certainly nothing wrong with remuneration for blogging mentions, nothing at all. Sort of like personal testimonials and probably should be given the same weight.

I would be extremely interested in knowing whether doctors, therapists, advocates, bloggers--anyone from whom I receive information--have financial interests in anything they prescribe, mention, or recommend. My now-famously-former-not-to-be-mentioned Migraine speck told me, during an office visit, that he had not made enough money from his work on a med that he had shared with me in a prior office visit he had invented. He said this in the context of an attempt to persuade me to accept a prescription for it, as he was noting a contraindication for the med in my chart.

So no, he's not my doc anymore; however, the parting of ways wasn't until after I was "outed" to his staff. The parting letter was just as it should be, not a thing untoward about me or him either, nothing that would prejudice anyone who read it. No need for me to reproduce it here.

Other than my two most Excellent Assistant Offspring (who dealt with my disability issues and who still drive me and help me), only one person in the world knew his identity and my connection to him. I did not volunteer to tell this person his name. It was requested of me in an email. Very shortly thereafter, he and I were individually living happily ever after.

Be aware that NOTHING YOU PUT ON THE INTERNET IS PRIVATE, EVEN INFORMATION IN AN EMAIL. Nothing you tell anyone, no matter who you tell what to, will be kept private. Don't trust anyone asking for information who swears to have disinterest in anyone or anything: that person has his or her own best interest in mind, only and always. And perhaps a vested interest at that and man, wouldn't I like to know...

I have absolutely no concerns about sharing the boorish behaviour of this doctor. I will most assuredly never again share his identity with anyone.

You never know anyone that you don't know. And unless you travel with the unknown person, you won't truly know him or her as the old advice goes.

For another story of how the internet can work, check out this story. No joke, to me this doctor is yellow-bellied for not commenting on the post she didn't like. Of course, this is just from my point of view: I love a good argument even if I don't win.

FTC: Bloggers, disclose remuneration for reviews
FTC: Bloggers must disclose payments for reviews - EarthLink - Technology News
Source: enews.earthlink.net



Parin Stormlaughter sent this using ShareThis.

Monday, September 21, 2009

Sharethis: Cocoa May be Beneficial for Migraines , Headache & Migraine

What marvelous news for Migraineurs!

Some years ago I discovered that neither chocolate nor cocoa were Migraine triggers for me; however, craving chocolate was invariably a signal of impending Migraine attack. Whether I indulged my craving and ate any chocolate or not, it had no effect on the timing, frequency, or intensity of the attack.

Glad to see good news on the chocolate front.

Here's a very nice chocolate sauce that does have plenty of cocoa solids.


Rich Chocolate Sauce


2 squares unsweetened baking chocolate
6 tbs water
1/2 cup granulated sugar
dash salt (important for flavor)
1/4 tsp vanilla
4 tbs butter

Heat chocolate and water over low heat, or microwave on high for 30-60 seconds at a time, whisking until smooth.

Add sugar and salt. Continue heating and whisking until sugar is dissolved and sauce is slightly thickened.

Stir in vanilla and butter. Serve any way you like including in a dish by itself. Makes 1 cup.




Theobroma cacao good for Migraine pain
Cocoa May be Beneficial for Migraines , Headache & Migraine
Source: emaxhealth.com



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Thursday, September 17, 2009

IMPORTANT Sharethis: FDA requires strong amputation warning on sedative - EarthLink - Health News

9/21 Edit: for tyops. I shouldn't try to write when I can't.


***Simulposting***

I imagine this will be of interest to people who need emergency room and urgent care for situations such as, say, Migraine attacks.

This story is full of emotion for me. I'm a musician, was professional for a number of years. To lose one of my arms would have been the end of my career, as it was for the woman here.

This med is one I have had prescribed off and on in oral capsules for years with success. There is no amputation warning for oral administration, the way I read the article.

Phenergan is also a component of oral combination drugs such as Mepergan which I've also taken with success. Those of us who take it by mouth are not the people this new labeling requirement will affect, it appears.

PLEASE read the article. If your doctor administers Phenergan by injection (or directs that you receive it by that route) then you need to know this information.



Phenergan "amputation" warning now required labeling
FDA requires strong amputation warning on sedative - EarthLink - Health News
Source: enews.earthlink.net



Parin Stormlaughter sent this using ShareThis.

Monday, August 24, 2009

Hades Neptune

I've written ad nauseum about my doubly Hades Moon: the Moon in my birth chart is in the sign of Scorpio and is sextile Pluto in Virgo.

I've now found, reflected in my birth chart, a good explanation of my astronomical, comical, and utterly stupid sensitivity to life. In the course of reading up on the various subjects I'll be working on in Transpersonal Studies, I've found that analyzing my own birth chart is providing me with some insight into how others with some of my problems have coped with them. At the end of the day, the things I've found in my birth chart back up my and my docs' beliefs that I'm not making up my health problems. My spine issues are there too and an astrologer commented that skeletal things should very gradually increase for me as I finish growing up.

The term Hades Moon comes from a book of that title by Judy Hall. She should write about all the planets that aspect a Hades Moon. My Neptune is also in Scorpio and it conjuncts my Moon in Scorpio and both are sextile Pluto, god of the underworld. Neptune conjuncts my Descendant axis giving it substantial "weight" in chart synthesis.

Here's a swatch from the Karmic Insight Report (available from www.cafeastrology.com). Unfortunately, it's up to me to synthesize how this sensitivity manifests itself through the deep, dark, and secret Scorpio. This swatch just talks about Moons and Neptunes in a very general way:
The ability to empathize is a soul quality you have developed through many past experiences. Your psychic openness and capacity to "tune in" to what others are feeling is certainly a talent and a gift, but it can also make you vulnerable to your environment in many ways. You unconsciously absorb the psychic atmosphere and feelings of the people around you, so much so that you may be unable to separate yourself and distinguish your own emotions from other people's. You are thus susceptible to being manipulated, especially through pity. Allowing others to leech off of you emotionally, financially, or even psychically can be a problem for you. On another level, when you are not in balance you may manifest an over sensitivity toward chemicals, pollutants in your surroundings, or even prescription drugs, and an intolerance for any sort of noise, stress, or dissonance. You tend to take it all in, rather than resist or maintain firm limits. You have rather soft, permeable boundaries. When you get out of balance, however, you respond well to subtle therapies which affect primarily the emotional or subtle energies and thereby bring you into harmony. Beautiful music has a healing affect upon you, color therapy, aromatherapy, or simply being in or around water can all be very effective for you.

It is also beneficial for you to periodically withdraw for renewal. Going on spiritual retreats or visiting sanctuaries, even just being out in the wilderness, are quite necessary for you at times. You have a pronounced desire to escape or leave the world.

Night before last I had a dream that a man was leading an exploratory expedition to Neptune. I was following them psychically because in the dream, that was what I did for a living: psychic monitoring for NASA (don't fret--the Migraine attack that generated this weirdness stopped hurting last night). The most significant part of the dream was that I looked up into the sky and, in daylight, "saw" Neptune as the dot portion of an exclamation point formed by clouds also.

Dreams speak the symbolic language of the subconscious mind. Guess my subconscious is telling me to forget Venus & fix the Hades Moon/Hades Neptune conjunction Descendant first.

*sigh* I doubt that will be nearly as much fun as helping Venus have a good time. I've been recording my dreams since high school psychology class. Once I start dreaming about something, it's time to address it.

Balance...balance...Neptunium balance...water...wilderness...

Or I could just forget it and pull the covers back over my head. :)

Check out my "Reading Now" list. I'm about finished with The Highly Sensitive Person: How to Thrive When the World Overwhelms You by Elaine Aron, PhD, (c) 1996 Broadway Books, 1540 Broadway, New York, NY 10036. I checked out both it and her The Highly Sensitive Person in Love from the library. Haven't read The Highly Sensitive Person in Love yet but I know for sure that I want to own The Highly Sensitive Person. There are a number of books addressing this trait and I've read several of them. Dr. Aron is Highly Sensitive Person (HSP) herself and has worked hard in this book to reassure us HSPs of our worthiness. Only a couple of problems with this book but the two primary ones are: she clearly states that Migraine is one result of not properly caring for your highly-sensitive self (Migraine is genetic--all the self-help books in the world won't make that gene go away). Second is her science on the physiological effects of long-term high cortisol levels and how to handle those effects; otherwise, one great book all in all. I recommend it. She and her husband crafted the studies that she conducted and she designed a questionnaire included in the book to help the reader get an idea of high sensitivity. Can't wait to start The HSP in Love even though Venus and I won't be bar-crawling as long as her father Neptune is standing in the doorway.

Libchik and I had a discussion about the differences between using psychological terms to describe a character trait and using astrological terms for the same trait. She's not sold on astrological birth chart information yet. Six of one, half a dozen of the other for my part. Psychological astrology (practiced by such luminaries as Liz Greene PhD. and Robert Hand) has already made the connection. Now we who come afterwards get to reap the benefits. :)

And I'm now at the end of my useful minutes. Gonna stretch out with rose quartz, idocrase, and Brandberg amethyst.


Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Use the ShareThis link if you want to share this. And remember that if my work gets published anywhere else without proper citation, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.