Tuesday, April 28, 2009

FOXNews.com - 6 Reasons Your Headache Treatment Is Failing You - Headaches | Migraine | Treatments

Excellent article with extremely useful and pertinent observations.

On the Plus Side:
+ Sensitivity of the Migraine brain first sentence of second paragraph. Most underestimated aspect of Migraine Disease in my opinion.
+ Contains the most recent figure on number of people in the U.S. with Migraine.
+ Does NOT repeat the fallacy that any specific prescription drug or genre of prescription drugs is more effective at treating attacks than another.

On the Negative Side:
- States that delaying medicating a Migraine attack might cause it to recur. My ex-hired famous Dr. Breathtakingly Arrogant--who is, in fact, a migraine-turned-headache-research scientist primarily--disseminates that Migraine attacks continue during the time all drugs are actively working in a body and simply re-emerge when the drugs wear off if the attack has not ended by itself. Easy to mistake a 3-day attack for a "medication overuse" or "rebound" unless you keep in mind that no drug is currently approved by the FDA to stop a Migraine attack and only 4 drugs are currently FDA-approved for Migraine prevention.
- First paragraph marginalizes the seriousness of Migraine Disease. More to come when I have more spoons to write a column about the latest information about permanent effects of Migraine Disease.



FOXNews.com - 6 Reasons Your Headache Treatment Is Failing You - Headaches | Migraine | Treatments
http://www.foxnews.com/story/0,2933,517483,00.html



Parin Stormlaughter sent this using ShareThis.

Monday, April 27, 2009

Incandescently Angry

"Nothing you put on the internet is private."
Unknown

"She died after a long battle with doctors."
Obituary


I wasn't going to complain. I said to myself, "You should just be quiet and take it like a man! Nothing you say or do will help. Patients are virtually helpless in the face of determined, oppressive doctors and you of all people should know that by now."

Then my goat got up and walked out.

Dr. Breathtakingly Arrogant has struck again.

I'm trying to make an appointment with a new migraine doctor. I had already spoken to this doctor personally and he agreed to see me, telling me to call his office to make an appointment. His nurse called me back a few minutes ago.

First, she woke me up. I'm a pleasant morning person, rarely wake up in a bad mood. How long it takes the world to assault me varies but I wake up feeling positive and optimistic. She, it became apparent, is not a morning person.

Second, she began grilling me about making this appointment. No need to relate the details. You all know how doctor's offices can be.

Third, she scolded me about the medicines prescribed by Dr. Breathtakingly Arrogant. Where on earth did she get that? When I left the message asking to make the appointment, I left no such information. What difference would it make to her anyway, since all I wanted was to make the appointment and the doctor himself had already agreed to see me??

Then, it dawned on me. She was looking at something, somewhere, that contained my former chart information.

I haven't written about my problems with Dr. Breathtakingly Arrogant. The problems were numerous and serious, unlike any I have ever encountered, and included Health Information Portability and Accountability Act (HIPAA) violations. The most troubling from my perspective was the false information he submitted to the Office of Personnel Management (OPM) in connection with my disability retirement application. When OPM asked for test records to substantiate the outrageous statements he had made and for the names of physicians he would have referred me to for further treatment of these non-existent conditions, he quietly removed all references to everything except the Migraine treatment he provided and then Meniere's Syndrome referral he made and submitted the new records without a word.

When it was time to find another doctor, my most Excellent Assistant Offspring, who had fielded all these problems and dealt with his office and OPM under POA from me, asked for my records. His office refused to give them up saying they would only submit them directly to the new doctor. Part of HIPPA clarifies that patients own their records, not the health care providers. My daughter had to ONCE AGAIN go through the clinic's Patient Relations Department for the umpteenth time in order to get my records. What he gave me, of course, is only part of the story but not to worry. The Sparkling Assistant Offspring glows brighter than I do and has all the bogus OPM submissions as well as everything else he has submitted to them--sorted, filed, and categorized like the librarian she is--so I feel like I have a complete file.

If this doctor has made yet another unauthorized disclosure of my information by any route, and if it contained especially bogus information, I believe I may consider filing a HIPPA complaint with the Office of Civil Rights.

I have been seeing doctors for many, many years. I've had migraine since I was 5 years old. I've got thyroid disease (eleven thyroid nodules), mitral valve prolapse, asthma--the list goes on. I know doctors and how to work with them. The most important issue is empowerment. Once a doctor sees that he isn't working with a limp dishrag but instead an educated patient intent on getting well, then real progress can be made. My hearing has been restored by careful work with the excellent neurotologist I see. Progress can be made.

I blog for several reasons and one of them is for Migraine Advocacy. Why, why do my Advocacy efforts have to include how my support system and I solve personal bad experiences? Obviously, that's the way God wants it.

I'm ill from anger and frustration--these things don't affect Migraine but do trigger Meniere's symptoms and my ears are already about to explode and my right Meniere's ear tinnitus is sounding like Chinese gongs. Woke up feeling not too terribly horrible. This will give me a chance to practice the energy balancing and crystal work I've been formulating to see how well they work for me when I'm under pressure. I have a goal to go back to school. I must get well enough to be able to do that. I will never be able to become a doctor myself if I cannot heal myself.

Of one thing you all may be certain; I'll be an expert in HIPPA regulations from the patient's side. If I can get well and get my PhD, nothing that has happened to me will never happen to any patient of mine.

See, I want to be a transpersonal depth psychologist. To try to "psychologize" me is the wrong approach. :)


On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Sunday, April 26, 2009

Swine flu - some links and ideas

President Obama has declared a public health emergency for swine flu. Consider the emergency the way you'd think of a hurricane emergency, he says.

In United States, swine flu has now been conclusively identified in California, Texas, Kansas, Ohio, and New York. It's in Mexico City as well. This strain is a combination of bird, pig, and human flu strains.

The Sparkling One cannot watch television and has not in more than a year. Movement on the TV screen triggers vertigo; therefore, she will not have the opportunity to overreact to the 24/7 news shows.

Here are some links that might be handy sources of non-television information.

CDC Emergency Preparedness & Response Site

American Red Cross: Preparing and Getting Trained

Welcome to the White House - US and has a link to a swine flu information update widget on the blog. Scroll down just a tad and look on the left for the swine flu widget link. It's the green one on the left of this page if you don't want to clog your hard drive.


I'm not going to restate the official recommendations. The U. S. Government has been recommending preparedness for years. If you're not ready, what on EARTH are you waiting for?

These are some additional things that might help. The entire Sparkling Family is doing/does these things as regularly as we can:

* Moderation in all things, including moderation. Don't blow your energy body away by freaking over anything. I've done it by overreacting. Isn't worth the trouble it takes to rebuild it.

* Consider getting certified in first aid and CPR. The American Red Cross is ALWAYS my recommendation for getting this kind of training. I performed the Heimlich maneuver on a choking elderly woman in a restaurant in Meridian, Mississippi. You cannot imagine how it felt to hear her daughter say, "She's breathing! She's breathing!"

* Consider making up a batch of Honey Medicine if you've used up what you had. This is good for all viral issues and it just tastes good too.

* Get a nice, really clear, quarter-sized piece of tumbled clear quartz to keep in your pocket. Clear quartz has the folklore legend of being a "cure-all". Keeping it with you should help keep your overall body frequency a bit higher than normal. Average body frequencies run from 62-66 Hz. Edging towards 66 Hz is a good thing. Soap it up and rinse it off every time you wash your hands. If you have time, it'll get a good recharging if you can sit it in the sunshine for a couple of hours. They're quite inexpensive as well.

* For the sake of the rest of us, STAY HOME IF YOU'RE SICK WITH ANYTHING CONSIDERED "CATCHING". Please. Do I need to further explain this?

* Get a small bottle of hand sanitizer to keep in the glove box of your car and your purse as well. Think gasoline pump handles, store door handles, credit/debit card swipy things and the stylus--if you have hand sanitizer (or sanitizing wipes in a sealed container), you can wash up regularly. Those clear plastic bags that newspapers are in when they're home delivered make marvelous trash bags for cars and such. No crook is likely to break into your car to see what's inside it since it's clear and they'll see trash, no temptation to put off tossing it since it's so small it'll fill up rather quickly.

Honestly, influenza viruses are airborne for the most part. I had true flu once when I was in high school. Like to have died. It's like getting hit by a cannonball and never hearing the shot.

The Sparkling One cannot afford any more damage. She's going to do like she does for all the hurricanes that come this way and yes, we get them here in Alabama. Hurricane Katrina came through with sustained winds of 75 mph and we're 250 miles from the Gulf Coast.

Hurricanes we can deal with. We'll see how well we do with swine flu.




On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Thursday, April 23, 2009

"You has a hurt?...

Lolcats and funny pictures

I used to work for Internal Revenue Service, before I had to retire on disability.

I once dreamt that Congress had passed tax legislation to allow for deduction of expenses related to the upkeep of pets--dreamt what the form looked like and everything.

It was a Schedule A deduction, in my dream. It was only available to single people with no one else living in the house with them, and only one pet. It was a percentage deduction and included pet food expenses, veterinary bills, collars, beds, carriers--all sorts of things. Yeah, I dreamt all this.

I need some =^-^= therapy right now.

Iz ok. I fix ur hurtz.




On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Saturday, April 18, 2009

Velvet Compassion and the Fortunate itzmeDebs

"When tears are in your eyes,
I will dry them all.
I'm on your side..."
Bridge Over Troubled Waters, written by Paul Simon


Short note before the storms get here and zap this self-contained human weather station...I'm going to indulge myself and I must get all my spoons used (.pdf) for indulgence and not stress and problem-solving and counseling and such. If you haven't yet explored But You Don't Look Sick, you must (link left too). Even if you're not chronically ill, you may know someone who is. At least read The Spoon Theory. We chronically ill folks mock the insensitive ones behind their backs if they should know better. If they merely don't understand, we point them to The Spoon Theory by Christine Miserandino who runs But You Don't Look Sick. They usually get it then.

We meet people along this road through life. If you're of the Christian belief system, you're already familiar with the straight and narrow road and the wide and easy way. We must all chose how we will deal with the slings and arrows of outrageous fortune that Shakespeare spoke of. Be under no illusion that all Christians chose the straight and narrow at all times. We all find ourselves off track. Life's a bitch, and then you die, right?

In fact there are people out in the world who already understand and "get it". Some people are caring and compassionate by nature, and I'm thinking of people who may be chronically ill themselves and people who may not be.

A soft thank you to two people (who know who they are) who have sweetly added their brushstrokes to the canvas of my little kindergarten art life. They didn't know at the time how important their help has been, but their brushstrokes were wide, sweeping, and flawlessly placed.

Never, and I mean never underestimate the effect you'll have on the people you meet on the road of life. Maybe they'll recognize and thank you. Maybe not, but that's ok too.

Two asterated rose quartzes transiting into my stellar sphere. How fortunate for me! :D






On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Friday, April 17, 2009

Star-Crossed or A Cardinal Rule of Energy Generation

I’ve found another piece of my energy problem puzzle. It's been in my stars all along.

I meant it when I said I would leave no stone unturned in my quest to solve my health problems. They’re serious, disabling, and confounding.

It’s been a journey since my father died last May. I’ve explored crystals, energy medicine, acupuncture, chiropractics, and Edgar Cayce health recommendations in my current full-time job of getting well. The years and mountains of money I’ve spent on Western medicine dismay me. I’ve derived benefit from all forms of health restoration and illness amelioration into which I have delved. I intend to continue them all for as long as I continue to benefit.

One insurmountable problem has plagued me as far back as I have memory, and that’s energy generation. Yeah my stamina is shot but I mean body energy when I say energy generation.

The problem is simple: a permanent solution has yet to be found, to my knowledge.

In the last few months, I’ve done some superficial reading and moderate pondering and decided that personality astrology would not cause belief-system conflict. Predictive astrology, making decisions and plans based on horoscope charts, would be a problem (and really wouldn’t be of much assistance to me). Being a true believer in psychology and professionally-administered, scientifically developed assessment tests makes personality astrology seem like a good fit.

My journey into self-understanding began when my late friend and Formation Director in Carmel, a PhD who administered psychological and other assessment tests at the State level before her retirement, gave me the MBTI assessment. Her advice and recommendations, guidance and friendship, finally drew back the veil on why I am the way I am (ENJT if you’re just wondering). She died of cancer, I voluntarily withdrew from Carmel, and had to start again, once again. But my firm belief in the value of professionally administered and scientifically-developed assessments was cemented. (Oh, go on and take a Tickle test. It won’t hurt and you might learn something. But get a counselor or psychologist for real assessments. They’re worth the price if you want the knowledge).

But, before embarking on any complementary or alternative health program and before considering anything found here at Sparkling With Crystals, I urge my gentle readers to evaluate and be strong in their own belief systems. You must know what you believe to be right and true before you’ll be able to evaluate whether a practice or system will be right for you. Clients and patients must find those whose beliefs are in line with their own in order to make optimal progress.

I was absolutely blessed by God to have accidentally come across a crystal healer tolerant of my belief system (no idea if he‘s an anomaly in the business, but he understands my belief system well). He made just a couple of recommendations but they were utterly perfect and spot-on. Without his help, I would still be bedridden as well as housebound.

I took his advice and ran with rock medicine. I buried myself under a rock with books and books and books.

Studying crystal and mineral medicine logically lead me into the broader field of energy medicine. I found Donna Eden, whose system doesn’t conflict with my beliefs, and made further progress. Still, I can’t get a handle on increasing the amount of bodily energy I produce. I can move it around myself, balance it top-to-bottom and side-to-side, but can't generate more.

I can hold onto what I have, for the most part. I can disseminate energy well when I communicate and when I’m being creative, for example. But generating sufficient energy is simply something my body cannot do.

In pursuing personality astrology through my birth chart looking for answers, I found a reflection of this energy-generation problem of mine. It seems I don’t have beneficial Cardinal planets in my birth chart, the only astrological chart I'm really working to understand right now.

Cardinal signs reflect energy production, Fixed signs ground the energy into usage, and Mutable signs share the results. To apply this strictly to health one should probably consider the planets in one's 6th House which covers physical health (where I have the Moon and Neptune), but my overall Quality situation can't be ignored.

  • Cardinal Earth: Jupiter, Saturn Air: Mars
  • Fixed Fire: Uranus Air: Venus Earth: Ascending Taurus Water: Moon, Neptune
  • Mutable Fire: Sun, Mercury

Plenty of Fixed and one of my Lights, the Moon; sufficient Mutable with my other Light there, the Sun, which is important. But only planets in my Cardinals and two can be conflicting for energy generation.

Jupiter expands and Saturn contracts, so the teachings go. The Lights, Sun and Moon, are the most influential bodies in a chart. Mars is my good shot at energy generation, for all intents and purposes.

I've got science behind me that I don't produce normal amounts of electrical energy, at least. There's a device called a AcuGraph that measures the amount of skin resistance present over acupuncture meridians. When last it was measured, I was producing 56% of what an average person produces. To compare, my two daughters were both slightly over 100%. We were all measured on the same day, same machine, same technician.

Anyway, I am more and more leaning toward the position that my energy problems are constitutional and not due to ill health.

Poor Cardinal signs, AcuGraph reading, having lived 48 years knowing myself better than anyone else knows me--I can't find anything else to account for my poor energy generation other than simply the way I'm made.

The Crystal Healer intuitively knew a crystal that would help. What's the crystal considered to be the one that carries energy to the most perfect state possible? One considered to be a pure source of energy? Clear quartz, the crystal he told me to start with. I'm telling you, crystal healers aren't your average Joes.

My recent clear quartz diet was very good for me in many ways. I'm gonna make clear quartz-charged water to rinse my hair and for the next time I dive into a nice hot bath. Heck, no reason not to put nice tumbled stones in my chest of drawers, the pockets of my coat and sweaters--the possibilities are endless. Clear quartz clusters--need more of them too.

Is this a cure for my problems? Will I suddenly become Amazing Woman? Wow, wouldn't that be FUN?? XD Heavens yes, it would be GRAND to become Amazing Woman. But clear quartz won't do it.

Clear quartz will NOT straighten my spine or move the displaced vertebra back in line. I seriously doubt it will balance the ionic fluids in my cochlea. It will raise my "frequency" as long as I'm in contact with it or until my body learns to maintain the higher frequency by itself.

What I expect is that redoubling my exposure to clear quartz will improve my functioning as a whole. That alone would be worth my efforts, the way I see it. I have come to the conclusion that any permanent or even long-term improvements, Eastern or Western, temporal or astral, are so far ahead of me that I can't see them from here. And I'm clairvoyant. I can see a long, long ways. :)





On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Monday, April 6, 2009

New birth time, stop the astrological press!

Sheesh. Just when you've got a handle on it, they change which side is up.

My mother, in going through more of my late father's things, found hospital birth records for me that show I was not born at 3:15PM CST. I was born December 14, 1960, at 2:18PM CST.

Wonder what difference less than a hour makes? It now makes my ascendant sign Taurus, and not Gemini.

Stop the press.

See, I'm formulating this theory and plan for restoring my health which will include, amongst other things, how the planets and things shake out in my birth chart. The sixth house is said to have an indication of some of the health issues for a person. Some people have no planets in their sixth house. Lucky, healthy them... :p

Let it NEVER be said that I am picking and choosing when it comes to getting well. If there is any reasonable chance that virtually anything will work, I'll at least give it a going-over in my head and with my Most Excellent Advisors and doctors.

Now I gotta redo all my work. Can't today--I'm a self-contained human weather forecasting and reporting station and the Local Talent is forecasting snow flurries tonight. Pounding head pain, pulsitile tinnitus every time I move, daily tinnitus is SCREAMING so it may be a while before I can analyze this new fact.

Oh WELL. Onward and upward.


On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.

Wednesday, April 1, 2009

She did it! She did it! She won!

Quit of being fired... ***FINAL Update 3/31***

All I have to add is YES!!!

Unrelated to this thread, I have discovered that many employers are simply unfamiliar with the law when it comes to their disabled employees.

I ran into that problem and had to fight like a m*****f***** for my rights. Not bitter, just resentful that I had to educate my own employer about what my entitlements were. Laws are what you elect your politicians for--know where your lawmakers stand on issues important to you.

FOR STARTERS if you have Migraine Disease--and even if you don't, I feel quite certain you know someone who does--consider signing up for the email updates from the Alliance for Headache Disorders Advocacy (link left too). They're working like mad people to give Migraine its fair share of federal funding for research, to improve education into this tremendously disabling disease, and other things that we may never know of because, well, they're just humble like that. :)

Be aware of your rights when the boss tries to talk you into quitting so he or she won't "have to fire you."

Must go, stress is killing me. My disability for April, that's normally direct deposited, isn't there. Can't deal, been stretching food, ears are exploding again, hearing now down in both ears, more severe weather tomorrow...

But a ray of sunshine in the battle. Whitney, you're my hero. *hugs*




On Twitter--Parin Stormlaughter

Copyright 2008-2009 Parin Stormlaughter, Sparkling With Crystals, ALL RIGHTS RESERVED. I do not grant reprint permission. Contact me to request permission to link. And remember that if my work gets published anywhere else, I'll pray for you. And perhaps take legal action. Rest assured, prayer is far more effective.